Hi, My name’s Freya
I have a rare disease, called Tay Sachs
Freya’s Story
In August 2023, Freya was diagnosed with an extremely rare genetic condition, Tay Sach’s Disease. It affects 1 in 360,000 and Freya is the first case in Hong Kong. She’s fighting it and trying to live life to the full like any toddler.
Sadly, unlike most toddlers, children with Tay-Sachs disease typically live only a few years. Currently, there is no cure.
Our Aim
To raise money and awareness, to help those charities who support families like us who are faced with being delivered the news, ‘There’s no cure’.
Not only that, we hope to raise enough money to provide research and development which will go into ensuring children and their families do not endure this devastating outcome that the we, as a family, face right now.
Get Involved ✨
How You Can Help ✨
Get Involved ✨ How You Can Help ✨
Frey Frey Wine
Freya and her condition has given us a unique way to see life and, of course, be thankful for her. This opportunity to make Frey Frey wine is a chance to honour our daughter who has give us so much even in her short time on earth. It is only fitting we toast her with a delicious, Aulds Family Wines, Barossa Cabernet Shiraz.